Sunday, May 31, 2009

Titrating off all my medicines

It has only been one month but already I am so bored with the whole thing. But it has been like my full-time job trying to manage my increasingly debilitating fibromyalgia, chronic fatigue, severe treatment-resitant depression, chronic pain conditions. Add to that hyperinsulinemia, obesity, PCOS, glaucoma, sleep apnea, granuloma annulare, monoclonal gammopathy- and there is more, i just am done listing for now.

Anyway, I applied for a depression study in April and started titrating off the meds I was taking in order to do the study.

My meds for 7-9 years have been:

Concerta (36 mg) - take to wake-up and stimulate me through hypersomnulence that comes with sleep apnea and depression
(Previously used Provigil)
Pritsiq (100 mg) - take for depression and energy and pain relief
I was only on this since April.
(Previously I was on Lexapro which quit working altogether. Celexa, Wellbutrin, Prozac, Cymbalta)
Lyrica (150-300 mg) - take for pain of fibromyalgia
Diovan (25 mg) - for blood pressure
Hydroclorothorizide (25 mg) - diuretic to reduce bloating to help with blood pressure

The treatment I start on June 1st is called rTMS or rapid transcranial magnetic stimulation. The method is specifically robot directed rapid RMS where a robotic arm directs MRI pulses at 30 per second at a prespecified part of my brain. This is done Monday - Friday for 3 weeks, treatment lasts about 20 minutes but the appointments are to be an hour at a time for set-up, etc.

I will post back comments on my detox/withdrawals but will start right now for today:

The biggest problem I recall the last 3 nights is temperature control. I am too hot, too cold, and have to pull on, kick off sheets, quilt 100 times over and over. I also have incredible pain - and 8 or 9 out of 10 mostly on the right side (is this because I sleep on the right side and my weight is hurting me?) from my head, neck, shoulder, arm, hand, breast, chest wall, ribs hips knee, foot - all the way up and down that side. Oh and my jaw which is made worse by my oral appliance for the sleep apnea. The jaw hurt so bad I had to take out the oral appliance every night the last 3 nights.

My wrist now hurts too much to type anymore.

Today I am sweating profusely, no matter what I do. How irritating. I also have absolutely no energy whatsoever.

Gardens and plants

What are you up to on this pretty day?

Being at home, not working for the first time in my life (since age 17) I am desparately needing to make a productive routine of sorts. Now that I seem to be over the worst of my medicine withdrawals (that is another entry) I am trying to wake up at some consistent time, dress in something quickly and head out to the backyard to inspect the veggie garden. Then I go out to the front yard and inspect the flower beds.

This morning my tomato plant has a flower, my spinach seeds are almost seedlings (I see something!) and the caladiums I planted last year in the front (white elephant ears) that everyone told me don't grow back - are growing back- 2 of them so far! I love all this growing around me...